About the Conference

The regional conference on rare diseases “Caring for Rare” is a unique event, that is bringing together the representatives from the National Alliances and patient organisations from Central and Eastern Europe, but also other relevant stakeholders – health care professionals, researchers, policy makers, representatives of academia and healthcare industry.    

By exchanging ideas, we and other participants learned a lot from each other. Given that these knowledge transfers occur most effectively when groups of experts have a chance to meet, discuss and share ideas. This is why we have decided to bring together Rare Disease alliances and different stakeholders from the Central and Eastern Europe for a two-day (hybrid) conference.