The regional conference on rare diseases “Caring for Rare” is a unique event, that is bringing together the representatives from the National Alliances and patient organisations from Central and Eastern Europe, but also other relevant stakeholders – health care professionals, researchers, policy makers, representatives of academia and healthcare industry.    

 By exchanging ideas, we and other participants learned a lot from each other. Those from more developed countries taught us what to strive for, – those that are still lagging behind us learned a great deal from us.

Given that these knowledge transfers occur most effectively when groups of experts have a
chance to meet, discuss and share ideas. This is why we have decided to bring together Rare Disease alliances and government representatives from the Central and Eastern Europe for a two-day online conference.